Dr Phil Friend (OBE FRSA) himself a wheelchair user, is acknowledged as the UK's foremost consultant on disability matters. A powerful and highly popular communicator, his company – Phil & Friends – has provided consultancy to many of the country's best-known companies. In addition to his professional activities, he is also a respected champion for equal opportunities and diversity in general, where his special blend of humour and direct speaking has won admirers from around the world.
I’ve known Simon Minty for many years in fact for a number of those years we were business partners, so I feel I know him pretty well. In this conversation, Simon talks about the things he finds invaluable in helping to maintain his level of independence and I must admit there were one or two surprises.
Simon has delivered training and consultancy in the field of equalities since 1997. He has personal experience of disability, being of short stature and of limited mobility.
Based in London, Simon works throughout the UK and internationally. Simon’s passion for equality, his innate and learned knowledge of disability, his ability to listen and address the issue in hand combined with an infectious sense of humour has enabled him to successfully work with clients from a small NGO to a multi-national investment bank.
He’s produced numerous videos and co-produced and performed in the sell-out Edinburgh Fringe comedy show Abnormally Funny People in 2005, returning again in 2015. He is a host of BBC Ouch podcast and the Phil & Simon Show
A keen traveller, he won the Travel X Travel Writer of the Year 1999 – Best Television Feature for his Channel 4 travel programme in China.
Hello everyone and welcome to this the inaugural edition of the Gear, Gadgets and Gizmos podcast.
We’re delighted to welcome as our first guest Geoff Adams-Spink one of the trustees of Research Institute for Disabled Consumers (RiDC).
Geoff was born with multiple impairments as a result of thalidomide. He has shortened upper limbs, a missing right eye and extremely restricted vision in his left eye.
He left the BBC in 2011 to set up his own disability equality consultancy and to Chair an international federation of organisations for those affected by congenital limb difference (EDRIC).
As a trainer and public speaker, he has worked extensively in the UK, many EU countries, Ukraine, China and Thailand.
He has an outward-looking world view and seeks to help international business, public and third sector organisations to learn from each other by spreading best practice in the field of disability equality.
In my conversation with Geoff he talks about the things that he uses to overcome the difficulties that his impairments put in his way. Some are simple devices others more complex but all provide a solution.
I’ve posted below links to the products and services that Geoff mentioned.
Don’t forget to take a look at the RateIt website hosted by the Research Institute for Disabled Consumers where you will find a whole host of products and gadgets which might be useful to you. https://rateit.ridc.org.uk/
Finally, if you are a disabled person and would like to join the RIDC Consumer Panel please email Chris Lofthouse at firstname.lastname@example.org or call 020 7427 2467
We kick off this show with a discussion about the future of work and the increasing use of artificial intelligence in recruitment. Liz Sayce and Jane Hatton discussed some of the possible repercussions for disabled people at a joint presentation they gave to the Royal Society of Arts. http://bit.ly/2VHxiWq
Simon reflects on the highs and lows of a recent trip to the US. Being stared at was a positive experience for once. A couple of disabled New Yorkers suggested the social model is to limited and claimed that disability is its own culture and the arts scene in Britain needs to recognise it as such.
Sadly two more campaigners died recently. We take a moment to remember the contributions made by Mike Oliver a grandee of the disability movement and Jane Nokes less well known but who made a significant difference.
Click here for the Itunes link https://apple.co/2AvKoe8or here http://bit.ly/2WcMElTfor the Audioboom version If you have any comments, feedback or suggestions, please email us at email@example.com. We hope you enjoy it.
How often do you hear, ‘what do the young people want?’ Perhaps not often enough. Certainly not as often as ‘how things have changed since my day!’
We wanted to hear from the next generation so we invited the multi-talented Abbi Brown on to our show. She works for the ad agency behind the now famous Malteser adverts on Channel 4.
With Abbi we explore whether you can make more of a difference from the inside or outside, who her (disabled) role models were when she was growing up and does she think there’s a disability movement these days. Indeed, what is activism these days, what are the next generation ‘fighting for’ if anything and does social media help or hinder? We also talk about using the bus and not thinking twice about it.
Abbi has personal experience of disability with OI (brittle bones) deafness and mental health problems.
Hello everyone just a quick note to let you know that I’m planning to develop a new podcast in which I interview disabled people about the things they use to overcome the barriers they face because of their disability. I’ll keep you posted as to when this will become available. In the meantime you might want to take a listen to this as it tells you a little more than I have here.
We seek him here, we seek him there, Those Frenchies seek him everywhere! Is he in heaven? Is he in hell? Where is that damned elusive Pimpernel!
Many of you will recall these famous lines from the play and novel “The Scarlet Pimpernel”. You may remember the Scarlet Pimpernel worked in the dark; his identity was only known to a few loyal supporters under a cloak of secrecy. I’m struck by the similarities between the Pimpernel’s behaviour and the response of today’s senior business leaders towards disability. Business leaders who are themselves disabled keep quiet and this often leads to a feeling that it’s a taboo subject. Disability lurks in the shadows and those employees who have non-visible impairments only tell trusted colleagues or friends. Very Pimpernelesque!
A recent report Disability Confidence: The Business Leadership Imperative’ supported by EY (formerly Ernst & Young) has found that business leaders with disabilities are twice as likely to be underrepresented in companies globally: though 1 in 7 of the world’s population live with a disability, fewer than half this figure (1 in 14 or 7%) of board-level executives consider themselves to have a disability. Of these, 1 in 5 does not feel comfortable revealing their disability to colleagues – highlighting that disability continues to be a taboo subject for many of the world’s leading businesses.
Another report this time published by the Thomas Pocklington Trust found that disabled people are being marginalised, 26% of British people admitted that they avoided conversations with disabled people, just over half felt that they did not have much in common with disabled people and 30% were concerned about causing offence and 17% didn’t know what to talk about. Evidence perhaps that reinforces the notion that it is better to keep quiet about having a disability.
A worldwide call to action for business to recognise the value of disabled people found disability is still woefully absent from the majority of board-level discussions globally – with the majority (56%) of global senior executives rarely or never discussing disability on their leadership agendas.
Despite all this gloom and despond, the question of disability employment was for the first time part of the agenda for business leaders attending the recent World Economic Forum (WEF) in Davos. Thought leaders from the world of disability were rightly excited. An enthusiastic panel of disability experts appeared on the platform and shared their thoughts and ideas about how global businesses could take advantage of the disabled talent that is just waiting to be unleashed. Sadly very few business leaders attended so the panel’s pearls of wisdom fell on empty seats. If we are to take any comfort from this sorry state of affairs it is that at least the subject was on the agenda.
There are other signs that some things might be changing.
A CEO of a large corporate experienced a severe mental illness and as a result, had to take time away from work to receive treatment. In my experience what usually happens next in these situations is a generous severance package is put together and the search begins for a replacement. Not in this case. The individual concerned made a full recovery and was supported back into their role. What makes this story even more unusual was that the CEO then talked openly and publicly about what had happened.
By so doing they offered reassurance to those in a similar position that it is possible to continue working in the most demanding roles after experiencing a serious mental health challenge. In this particular company, at least, mental illness is now openly discussed. Programmes are being developed to assist and there appears to be a steady change in the corporate culture which now encourages people with non-visible impairments to share their stories.
At last the Pimpernel has been brought into the light.
The other day as I was shaving I remembered my mother, this often happens. I’m not sure why the act of shaving invokes these memories, but it usually does. My mother died back in 2001; it was a good death. She was lying in bed and asked her devoted carer, Chrissie, for a cup of tea, and when Chrissie returned with it, she had departed this life.
I recall that whenever I visited my mother particularly towards the end of her life, the first half-an-hour of our conversation was spent in cataloguing and discussing her ailments, aches, pains, and other trials and tribulations. She would sit in her velour covered armchair in her flannelette nightie with her nasal cannula in place and hold court. It was impossible to move her off health topics until she had exhausted every possible nook and cranny.
These memories were in part awakened because of a recent weekend I spent in rural Yorkshire with some good friends all of whom are now in their 60s and 70s. We all arrived at our host’s lovely old house and after the usual hugs and cuddles and comments like “you’re looking well” and “you look just the same” “you haven’t aged a bit” we all settled around the large kitchen table with cups of Yorkshire tea and a variety of other infusions.
It wasn’t long before the conversation turned to the various health conditions that several of us are currently managing. Five out of the eight of us were wearing hearing aids, three had had a hip replacement or were waiting for one, and we discovered that just about all of us now take handfuls of pills to keep body and soul ticking over. It didn’t matter how hard we tried over the rest of the weekend we kept returning to the subject and if we weren’t talking about the health issues we were talking about the gadgets and appliances we are using to fight off the ageing process. Automatic bottle and tin openers, Amazon’s Alexa, grab rails in showers and subtitling on television programmes all got a mention.
How does this happen? I don’t recall banging on endlessly about my health when I was in my forties. Is there some kind of switch that gets activated when we retire or reach our sixth/seventh decade?
I think in my mother’s case the process was gradual, but I think she became preoccupied with her health because her world gradually contracted as she aged. She rarely got dressed, hardly ever went out except to the hospital or the local doctor. She had few visitors, and the TV was her only window on the world. I recall that on one occasion my brother took her shopping in Croydon. They strapped her oxygen cylinders to her wheelchair and spent the afternoon travelling on the trams and visiting the shops in the shopping mall. When we next visited her general description of her latest health challenges took second place to the magic of Croydon. She had something else of interest to talk about!
So what of my friends and me in Yorkshire? We are all busy, we all travel and have a wide variety of interests. We all routinely access the internet, we all have grown up children plus grandchildren our worlds could hardly be described as contracting.
Maybe the problem is that if you have a peer group who are all in their sixties and seventies you have a shared history and you are all anxious about the same things like the gradual loss of your physical and mental faculties.
Perhaps part of the answer is to hang out with forty-year-olds? When I see my grown-up children, our conversations are all about what’s going on for them. I listen to their hopes, fears and dreams which are often wrapped up in things like mortgages, buying a bigger house, work, holidays, their children’s education and so on. These are all things that I have been through so can contribute my ideas and suggestions. Fortunately or unfortunately they aren’t going through what I’m now going through so they have no particular interest or suggestions to make. They care, but the topics are alien to them. The terrifying realisation is that I’m slowly but surely becoming my mother and my children are indulging me. How very depressing! Now, where did I leave my reading glasses and what should I be doing next?
How many of you reading this think about the cutlery you might use when you go out for a meal? The chances are you’ll be much more interested in the menu, the prices, the people you’re eating with and the restaurant’s ambience.
A similar situation arises when considering going to the seaside on a gloriously hot summer’s afternoon. If you’re fastidious, you’ll check your car tyres, the oil, you’ll fill up the windscreen washer bottle, and you’ll make a list of things to take that will make the trip more enjoyable. I doubt that you’ll think to check on the availability of toilet facilities at motorway services on route or at your destination!
For many disabled people, particularly those with severe or complex mobility impairments, the exact opposite applies. The availability of appropriate toilet facilities will be uppermost in their minds, and the lack of certainty about whether the necessary facilities are available may be enough to prevent the trip to the restaurant or the seaside.
What’s ironic is that accessible facilities have not kept pace with the increasing availability of personal transport through programmes like the Motability Scheme. The motor industry and, in particular, mobility vehicle adapters have continued to design and develop all manner of gizmos that enable even the most severely disabled person to either own and drive an accessible vehicle or to be safely and comfortably carried in one as a passenger. The variety of electronic devices now available is mind-boggling. Vehicle tail lifts make it possible for extremely heavy powered wheelchairs to be lifted and secured; seat transfer systems assist people to move from their wheelchairs into the driving seat, electronic hand controls take the strain out of steering, braking and changing gear. All these innovations, of course, come at a price but what is the point of spending thousands of pounds on an accessible vehicle if you can’t enjoy an accessible environment on the route to and at your journeys end?
It’s not all bad news. Wheelchair users have seen significant improvements in the provision of accessible toilets. The National Key Scheme better known as the Radar key began in 1981. Since then, more than 400 local authorities and thousands of businesses have joined the Scheme. Some 9,000 toilets are now listed as being accessible via the Radar key, but the figure is probably much higher. Wheelchair accessible restrooms are far more common, most motorway services, mainline railway stations, shopping malls and theme parks have had these facilities for a very long time.
A study in 2009 by the University of Dundee found there were 250,000 people in the UK for whom a standard accessible toilet does not meet their needs. Accessible restrooms are great for those who can get themselves out of a wheelchair unaided. However, lots of people can’t do this, such as people with profound and multiple learning disabilities, motor neurone disease, multiple sclerosis, cerebral palsy, and some older people. John Lewis, the famous high street retailer, recently made headlines for all the wrong reasons when a mother complained that she had been forced to change her severely disabled child on the toilet floor. John Lewis defended itself by arguing that it didn’t have enough space to provide bigger toilets but promised to review this when it refurbishes or builds new stores.
The Changing Places campaign (http://bit.ly/2E9Dc8X) begun back in 2003 seeks to ensure that the most severely disabled person has access to appropriate toilet facilities thereby enabling them to do what most of us do without even thinking about. As a result of the Campaign’s activities, there are now well over one thousand Changing Places toilets across the UK. These toilets provide not only, as you might expect, a w.c. and wash basin but also offer a hoist, a sizeable drop-down table for changing purposes and plenty of space to enable carers or support workers to assist the person where necessary. It is becoming increasingly possible to plan a trip using the Campaign’s route planner to identify suitable toilet facilities on your journey. As an example, I plotted a route from Hertford in Hertfordshire to the Brighton Marina in Sussex and found at least seven facilities that meet the Changing Places criteria.
A more recent exciting innovation which began in 2014 is the development of the Mobiloo. (http://bit.ly/2H1JfQk) The concept is very similar to the Changing Places facilities, but with a significant difference. The toilet equipment is fitted inside a small van or lorry which means it can be located at just about any outdoor event, space permitting of course. Mobiloo is a social enterprise that now has a fleet of seven vehicles across the UK. The vehicles are for hire and come with a volunteer driver who shows people how to use the equipment onboard. The Mobiloo opens up all manner of fascinating travel possibilities; gymkhanas, craft fairs, sports events, music festivals, Glyndebourne and Glastonbury here we come!
We’ve come a long way since the days of institutional care for the most severely disabled people in our society. Independent living, autonomy, accessible housing, personal transport are not just pipe dreams; they are becoming the norm. We will know we’ve cracked it when those with the most complex disabilities can travel around the country without worrying about whether they can find and use the loo!
As you may be aware, The Daily Mail (5th February and 18th February) published articles accusing Motability of “hoarding £2.4 billion and paying its boss £1.7 million” here’s a link to the article http://dailym.ai/2Cp2jUF and http://dailym.ai/2CpQbT2. Both Motability and Motability Operations have now published letters setting out clarifications of some of the accusations made in the debate, and these are on their websites http://bit.ly/2HBmYZv
Following this coverage, a parliamentary select committee initiated by Esther McVey, formerly the Minister for Disabled People and now Secretary of State for Work and Pensions, is to undertake an “investigation”. Frank Field MP will chair the committee.
I’d like to spend a moment or two remembering the Motability journey if you’ll pardon the pun. I remember the days of the infamous three-wheeled invalid carriage and the feeling of being treated like a second-class citizen regarding personal transport, travel and independence. Buses, trains and taxis were mostly inaccessible, and many severely disabled people relied on the goodwill of others to get around.
The Motability Scheme began back in 1977, and it made a difference, but for a long time, it wasn’t great. Back then it felt like the staff were doing you a favour by allowing you to lease a car, rather than recognising that you chose to hand over your Mobility allowance to get it. The Scheme was bureaucratic and complicated, if, for example, you scratched your car while loading your wheelchair, you were penalised. It seemed back then that the focus was on the car rather than the disabled person.
Since his appointment over ten years ago, the current CEO of Motability Operations, Mike Betts, and his team have entirely transformed the organisation, and as a result, the Scheme has seen a massive increase in its disabled customers. Motability Operations is now a commercial organisation with a real understanding of the needs of disabled people. It has a supportive infrastructure and an enlightened business model. This approach has resulted in a better deal for its 600,000 disabled customers, with excellent customer service that’s available to all. The Daily Mail has chosen to mislead and confuse these facts in its story quite deliberately.
I should declare an interest at this point. I have been a long-time supporter of the Motability Scheme, and I’m a satisfied customer.
It wouldn’t be overdramatic to say that some of these recent accusations amount to an attack on the Scheme, and the way it is run. We need to ensure that everyone is made aware of the facts and that we demonstrate our support for the values of the Scheme, personal, choice, independence, control and outstanding customer service.